Dear Reader,
While
doom scrolling Facebook reels, I came across Claudia Merandi from The
Doctor Patient Forum. I am empowered. There are so many things I
didn't know.
What
I do know is this:
In
2012 when my back started to hurt, I ignored it for a while, doing
things I would normally do until I couldn't. I then went to the
doctor as I could no longer stay active. I was sent to Pain
Management who did a series of injections, I then started to get pain
in my whole body along with this “running” sensation. I was
diagnosed with Fibromylagia and given Gabapentin and Muscle relaxers.
I wasn't happy with my treatment as I was feeling worse and not
better, so I found another provider.
I
happily went to Wisconsin Spine & Pain (Called something else at
the time). I was given tramadol and switched to Lyrica. I went
through years of medication switches and injections before I had had
enough. I then found and wrote to another pain provider about my
history. Once I switched in 2023, I knew things were off, but I had to
keep going.
I
was taken off tramadol as I'd already gotten off Cymbalta thanks to
Cymbalta Hurts Worse on Facebook. I was told that tramadol was making
my pain worse. How? I couldn't do anything that I used to be able to
do. I went from being active (getting those 10,000 steps a day to
barley 2,000) to nothing. I couldn't stand, walk or bend.
As
you know from my previous post that I got Disc Replacement surgery,
because that pain in my back? Was made worse by everything I went
through. My back currently doesn't hurt but I still experience widespread pain all the time.
Through
the years I've experienced the following treatment suggestions:
*Lose
weight (where? I'm 5 feet tall and 110 pounds naturally after having
4 kids)
*Try Swimming (I hate swimming and once I get “cold” it's over for me)
*Try Yoga (I did both before, during and after)
*Strengthen your core (Duh, isn't that was Yoga was for?)
*Physical Therapy (I've exhausted my insurance benefits for this multi years)
*Medications: Tramadol, Cymbalta, Gabapentin, Lyrica, Meloxicam, Celebrex and multiple others. Notice how only one is actually for pain and that didn't work
*Read a book (I've got multiple titles of books that should “help me”)
*Try counseling (I have thanks)
*I've had several of the following injections: Epidural Steroid, Facet Join, Medial Branch Block, Nerve Blocks, Radiofrequency Ablation, Trigger Point, Sacroiliac Joint, Caudal (this one worked but they only did it once and refused to do it again) and Injections into my hip and neck.
*Change your diet (I've done this several times over but again, have to watch my weight, being such a small person it's not worth being accused on having an eating disorder)
I've
been raw dogging it with 4x Ibprofen, 2x Tylenol and 1 Tizadine twice
a day. I don't have any other choices. I can't be put into the
position again; I can't go in once a month.
I'm
just an adult in pain asking to be trusted to take my medications
without humiliating drug testing and monthly appointments that I
can't afford.
https://www.thedoctorpatientforum.com/
https://www.youtube.com/@claudiaa.merandi1969
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